{"id":2248,"date":"2026-01-09T21:07:02","date_gmt":"2026-01-09T21:07:02","guid":{"rendered":"https:\/\/www.merwanjeeframjee.com\/?p=2248"},"modified":"2026-01-09T21:07:02","modified_gmt":"2026-01-09T21:07:02","slug":"1-9-ehlers-danlos","status":"publish","type":"post","link":"https:\/\/www.merwanjeeframjee.com\/index.php\/2026\/01\/09\/1-9-ehlers-danlos\/","title":{"rendered":"1-9 Ehlers-Danlos"},"content":{"rendered":"\n<ul><li>Daily creative writing<\/li><li>Daily Yoga, app calls it &#8220;Yin Yoga&#8221; <\/li><li>Daily Meditation<\/li><li>Stayed off the Internet and uniformed. <\/li><li>Did not diet<\/li><\/ul>\n\n\n\n<p>So far so good for January.  I&#8217;m trying to Yoga everyday in January, not sure if I&#8217;ll keep it up all year long but so far I&#8217;ve been doing floor yoga \/ long hold poses and that works well for me.  <\/p>\n\n\n\n<p>Yesterday I went to the doctor and she said I fit the criteria for Ehlers-Danlos, which didn&#8217;t surprise me much as I pop my joints out of socket regularly and have ever since I can remember (ouch) and I own every sort of orthotic and brace under the sun&#8230; but I was shocked she knew what it was and agreed with me and understood the diagnostic criteria.  <\/p>\n\n\n\n<p>Epilepsy and GI issues go along with one particular type along with the usual connective tissue issues and heart involvement, but there are hurdles to getting the genetic te$ting.  I am going in for a sonogram on my heart.  I&#8217;ve had gastroparesis so my stomach is not emptying and that&#8217;s been quite a hurdle and I&#8217;m supposed to get a barium swallow for that, but it sounds scary so maybe I will chicken out.  I want to eat a lot sometimes but have to remind myself &#8211; it won&#8217;t go anywhere, then I&#8217;ll drink and it will fill my stomach further and it&#8217;s very uncomfortable and is destroying my blood sugar + nausea, weakness, dizzy and fatigue.  <\/p>\n\n\n\n<p>I wonder now if I always had gastroparesis stomach \/ GI issues and that was what was driving the fatigue this entire time.  The only time I have ever felt well I&#8217;ve been fasted and otherwise not eating. <\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" width=\"359\" height=\"405\" src=\"https:\/\/www.merwanjeeframjee.com\/wp-content\/uploads\/2026\/01\/SCR-20260109-lnxo.png\" alt=\"\" class=\"wp-image-2250\" srcset=\"https:\/\/www.merwanjeeframjee.com\/wp-content\/uploads\/2026\/01\/SCR-20260109-lnxo.png 359w, https:\/\/www.merwanjeeframjee.com\/wp-content\/uploads\/2026\/01\/SCR-20260109-lnxo-266x300.png 266w\" sizes=\"(max-width: 359px) 100vw, 359px\" \/><figcaption>MOSS.<\/figcaption><\/figure>\n\n\n\n<p>Anytime I eat carbs especially I fall asleep afterwards.  Caffeine doesn&#8217;t help, nothing helps.  The internet is like, &#8220;oh that&#8217;s a normal carb coma!&#8221;  Uh&#8217; no, no it&#8217;s not.  It&#8217;s not normal to pass out after eating all the time.  I do better low-carb but I can&#8217;t eat fat-fiber very well at all right now with my stomach refusing to empty properly.  It does best with liquids and starches but carbs are difficult.  Idk, someday I&#8217;ll figure it out I suppose.  <\/p>\n\n\n\n<p>Worst thing is right now in the middle of my back it will hurt really bad when I eat.  <\/p>\n\n\n\n<p>Anyway, I&#8217;m feeling more optimistic about life.  I&#8217;ve been enjoying learning Japanese kanji. <\/p>\n","protected":false},"excerpt":{"rendered":"<p>Daily creative writing Daily Yoga, app calls it &#8220;Yin Yoga&#8221; Daily Meditation Stayed off the Internet and uniformed. Did not diet So far so good for January. I&#8217;m trying to Yoga everyday in January, not sure if I&#8217;ll keep it up all year long but so far I&#8217;ve been doing floor yoga \/ long hold [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":2249,"comment_status":"closed","ping_status":"","sticky":false,"template":"","format":"standard","meta":[],"categories":[7],"tags":[],"_links":{"self":[{"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/posts\/2248"}],"collection":[{"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/comments?post=2248"}],"version-history":[{"count":1,"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/posts\/2248\/revisions"}],"predecessor-version":[{"id":2251,"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/posts\/2248\/revisions\/2251"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/media\/2249"}],"wp:attachment":[{"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/media?parent=2248"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/categories?post=2248"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.merwanjeeframjee.com\/index.php\/wp-json\/wp\/v2\/tags?post=2248"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}